EASTIN - Emanuele, 10 years old. Autonomy in daily life for a person with Duchenne Muscular Dystrophy - Emanuele, 10 anni. Autonomia nella vita quotidiana per una persona con Distrofia Muscolare Duchenne

Authors: Lazzarich C
Title in English: Emanuele, 10 years old. Autonomy in daily life for a person with Duchenne Muscular Dystrophy
Original Title: Emanuele, 10 anni. Autonomia nella vita quotidiana per una persona con Distrofia Muscolare Duchenne
Publishing details: Portale SIVA Fondazione Don Carlo Gnocchi Onlus
Publication year: 2006
Insert date: 11/7/2554
Latest update: 20/5/2559
Source database: Siva (IT)

Description
ISO - ICF

Description

Emanuele is a child, aged 10, suffering from progressive muscular dystrophy type Duchenne. He lives with his mother, a physiotherapist, that until now has coordinated on her own all professional interventions (physicians, pediatric neurology, pulmonologist, cardiologist, orthopedic technicians, etc..), as a response to the needs of her son. Now Emanuele’s mother is no more able to manage the situation by herself, as it has turned more difficult. We intervened in order to try to support her, focusing on five major issues concerning the autonomy of her son: the power wheelchair, the renovation of the bathroom, the accessibility of the home garden, the environment control and accessibility to personal computer. For each topic a specific project was formulated, each identifying needs, objectives and expected results.